With the frequent doctor and children's hospital visits as a part of our lives; like anyone in our situation with a sick child, we've come to make the best of what we know as our reality.
The more we know, the better able we are to cope with daily situations as they present themselves.
What a difference this change of location has made for Emily, now she can feel the freedom of going in and out under her own feet!
The space to move!
Going to and from; feeling the wind beneath her feet!!
The simple joys we so take for granted, yet for someone like Emily, each moment of every day, the thought has to be entertained.....what if this is to be her last?
In the early days, the doctors didn't even give us much if any hope that there would even be an Emily.
I don't know, but for the very people it is that we trust our lives, the only one true hope we have is, in the Lord, Jesus Christ!
Sometimes it makes me wonder, what would happen if there were no god under heaven?
Any way, that is a long and drawn out thought, one which I am not ready to address.
We are ever thankful that God has granted her the space to breathe, yes, however in a body that does not move like every other 2 1/2 year old, but she takes every day and makes of it what she can.
We have no chains on her; wanting her to experience everything life has for her!
Before Emily was born, the doctors were telling us more information than we wanted to know, but what we did know, she had hydrocephalus, which required a shunt at 4 months of age and a revision at 23 months of age. Because of the severity of her hydrocephalus grade IV, told us that she would have cerebral palsy, but to what severity we didn't know.
She has been somewhat delayed in every area; raising her head at 8 months, sitting alone at 14 months, kneeling to stand at 20month s, cruising at 28 months......talking; she doesn't but make sounds, however she is otherwise very smart as she understands everything said to her....
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