Funding Issues to Make A Dream Come True)

Lexa		11:59 (8 hours ago)
Hi Marilou, Can you provide me with some more information on the specific pie...

	14:26 (6 hours ago)
to Lexa

Hi Lexa;  Emily Blundell is 4 years old; August 1, 2010 She  has IV Hydrocephalus, is non verbal, low vision and Cerebral Palsy; we have tried to fund for this trike and tray through GoFundMe but have raised very little.  Thanks to variety, Emily had her first prescription eye wear at 3 months of age and and her plagiocephaly helmet at 14 months.

Thank you

​

This letter was addressed to Variety The Children's Charity  

Please if you see it in your heart to donate a few dollars so that one little girl can run like the rest??!!!

gofundme.com/Couragous-Ability-Defined

​

What she loves

This is what Emily loves to do; build towers, building blocks.....so that is what she received for her forth birthday, but she would too like to join her peers as they bike ride along....
This is the actual Rifton adaptive tricycle Hi I am; Emily Irene dream trike
With the loop handlebar,communication tray, back and head rest and hand brakes for a small trike with the adaptions is rounding $1500 small for ages and body frames 4-7 years old

Thank you for those who have already donated, but $125 is a long way from $1500

http://www.gofundme.com/Couragous-Ability-Defined

Please donate to make one little girls dreams come true!!!BETWEEN VARIETY-THE CHILDREN'S CHARITY AND THE AT HOME PROGRAM EMILY THEY ONLY PROVIDE THE ESSENTIALS OF

*PRESCRIPTION EYE WEAR
*AFO'S (LEG BRACES)
*WALKERS
*WHEELCHAIR
*WASHROOM SUPPORTS
*INCONTINENCE SUPPLIES

AND IF YOU KNOW EMILY SHE HAS NEEDED ALL OF THE ABOVE

THANK YOU

GoFundMe.com/Couragous-Ability-Defined

http://www.gofundme.com/Couragous-Ability-Defined

Please assist my daughter born with IV hydrocephalus, Cerebral Palsy, Low Vision and who is non verbal gain the needed coordination to ride with her big sister and her peers.


Emily was born at 36 weeks August 1, 2010 with grade IV hydrocephalus....We were initially told by a group of six doctors not to expect much "IF" Emily survived at all and if she did not to expect much...basically saying she'd be in a limp rag...
She had a shunt placed at four months of age....revised at 23 months of age...perscription eye wear at three months...and even though we knew it....she was officially diagnosed with cerebral palsy at 17 months...
She was fitted for her first set of AFO's at 15 months....Emily has low vision and is non-verbal

We would really like to get Emily this bike. This is a special bike that is made for children like Emily. It has special features to make riding possible for her. With the help of this bike, not only will Emily be able to build muscles and improve balance, but it will give her a level of independence and confidence that she could not get without it. These bikes are not covered in medical plans, and our family struggles with having to pay for medications and therapies. Without help, this bike will only be a dream. Emily will soon outgrow the small trike she has been using. We are hoping to raise enough to buy the bike before she is left with this mobility. Every dollar counts, no amount is too small! Thank you in advance for your help!

Please help Emily RIDE like her peers!!!!

http://www.gofundme.com/b7o7fc 

GO FUND ME!!!

This is the bike of Emily's dreams so that she can ride like everyone else 

As she grows; this little trike does not grow with her

and in a short while she will be receiving a wheelchair

 So that she will be able to enjoy long walks 

because a stroller now does not fit

So many programs Emily has been assisted by; 

The Variety Club 

(the children's charity)

and

the At Home Program

(a provincially funded program)

British Columbia

But they have just provided the major medical

Eye Glasses

(from aged 4 months)

leg AFO's

wheelchair

partial prescriptions

(some of Emily's medicines are out of pocket)

and if we don't have the resources

unfortunately

  (she has gone without)

prolonged seizure 

and

migraine medicines 

IF YOU FIND IT IN YOUR HEAT TO GIVE

BLESS YOU IN BUNCHES

GO FUND ME ---GIVING EMILY AT LITTLE STEP UP IN LIFE

http://www.gofundme.com/b7o7fc

Here is Emily's GOFUNDME account

It has definitely been a journey GOD is guiding us through...in all of her four years

SHE IS ENJOYING EVERY MOMENT

It looks as though in the long term, Emily will be in line for a touch ipad for communication, but too it looks by the way the public school system is getting restructured...she will more than likely LOST IN THE SYSTEM....one of the major reasons we have chosen for the short term (financial) Abbotsford Christian School (IF) we can see our way clear GOD WILLING both she and Ellie with enjoy the advantages of Abbotsford Christian. My fear that in the public system more than the private she with be lacking the communication to make friends and be bullied because of it...and won't advance

Like

• 
•  not having children in the public system and not being apart of it since I was in school in the '80s, I can'the say one way or the other, however what I have seen is a deterioration of not so much the scholasti.c but special needs trai.ni.ng from the late '80s to mid '90s. and that is what we are  worried about.

  Emily, though non verbal is very bright and we don't what to see her loose all of the progress she has made. 
  Saying that, having Ellie go to Abbotsford Christian from first year preschool, the administration and teachers have walked this journey of Emily's development too and are excited to see her develop physically scholasticly and spiritually through their program.
  The right adult models are very much needed as she develops thus hopefully her peers with grow to love and understand her as well.
• 
• AND SHE TURNED 4

school and summer days

My little Emily is on the move.....before she gets tired and collapses

Happy as she is to watch her older sisters accomplishments

She is in to having a little fun too

communication is still a struggle for her

but she was a happy 3 year old preschool graduate

Eating ice cream treats and playing in the sun

Two Months of Calm

OK, so it had been two months since the smothering accusations of our not too friendly across the hall neighbours, which threatened us with eviction if a solution could not be found for the volume of noise created by myself vocalizing instructions toward Emily (she's three, so a little loud talking is normal, but with Emily that is increased some ) as well as her moving about the apartment...and hallway corridor

as if their young child of six months was or would be any quieter, but....saving those comments for another day.....

WHAT HAS BEEN SINCE....
We are still here after two formal  pre-eviction letters and one property management conversation; mind you...we didn't take those accusations lying down either as we called in the local media Global BC and reporter Elaine Yong who we saw as the perfect person for publicly addressing our story.
She has a very personal story to tell as well.....as her daughter; Addison was found to have a serious heart condition who was in need of a heart transplant at not even a month old....
So after doing the story which was widely received with mostly positive comments, we were live celebrities of the day.....
Though the hub-bub of celebrity has subsided, we are still on the top of many a mind...."How are things going" is their main inquiry.

"Good" is our response...Even though we only live a stride apart...we've seemed to keep our distance....

Since then, Emily is almost finished her first year of pre-school (with no physical personal aid support)  challenging the teachers some..... the teacher (who was majoring in  physio -therapy as well as child care and who had the most understanding and compassion when it came to Emily's individual needs unfortunately moved with her paramedic finance to northern British Columbia.....Th-ems the luck!!!!

On to bigger and better things; pre-kindergarten at Abbotsford Christian School Tuesday and Thursday afternoons while her older sister, Ellie-Marie will be in kindergarten full days Tuesday and Thursdays....so if there are issues surrounding someone aiding Emily, I will be there!

To get Emily ready even further she has been fitted for a paediatric wheelchair like this one and her occupational therapist has suggested her further aiding Emily

T